"There are side effects of breast cancer treatment that are private and not visible. Lymphedema falls into this category. But unlike those other side effects, lymphedema is often unexpected. So it feels like adding insult to injury when it occurs, especially if women haven’t been told very much about it."
Marisa Weiss, M.D.,
Chief Medical Officer
Even though the condition is relatively rare (5-20%), a 2013 Mayo Clinic study found that up to 75 percent of patients who undergo a lymphonodectomy worried about getting lymphedema.
“This is the first step to quantify the problem. The aim is to educate not just patients but providers about what we really need to do, which is to better stratify patients in terms of what their true risk really is,”
Dr. Sarah McLaughlin, Mayo Clinic, Journal of the American College of Surgeons, March 2013
The National Lymphedema Network’s mission is to empower our community of lymphedema practitioners and patients by providing educational opportunities, networking opportunities, and interventional resources. We aim to inspire clinicians to provide world-class care for people with lymphedema by promoting best practice guidelines and standards of care.